Mornings

One of the larger tasks I have had to work on during this whole mental health process is sleep. My sleep patterns have always been odd, at least that’s what I’ve always told myself. When I was younger I would tend to wake up in the middle of the night and have difficulty going back to sleep. Then I spent the better part of 25 years working night shift. Mostly 12 hour shifts but there was a good bit of that time spent working 24 hour shifts on an ambulance. This meant, of course, that any time, day or night, the pager could go off and I’d have to wake up and at least be able to pretend to be functional. I got used to it pretty quickly. I was even pretty good at it. I wouldn’t even take off my uniform, I’d get back to quarters, kick my boots off and fall asleep in the recliner. As soon as I stopped moving I would fall asleep and as soon as the pager went off I’d be awake.

The unfortunate thing is, apparently brains and sleep patterns aren’t really supposed to function like that. I’ve tried various pharmacological and non-pharmacological techniques to help regulate my sleep but what finally seems to have worked is Lunesta (eszopiclone). I’s the only thing I’ve found that will put me to sleep and not make me a total zombie the next morning. The difficulty is, it turns out I’m kind of a zombie in the morning anyway. I have probably slept more in the past year than I did for any two years I was working put together, I slept for eight hours right before I sat down to write this very post, and yet I still take literally hours to feel like my brain is fully on-line in the morning.

I have been assured, and also noted myself, that this is something of a family trait, and I come by it honestly but it’s still troublesome. I’m sure this arrangement is much healthier for my brain-meats but I do miss being able to get out of bed and start the day instead of spending two or three hours bumping into walls.

It’s a Process?

As I have mentioned, something I’ve been learning, slowly, is I can’t ignore things anymore. I was really good at ignoring things. So good, in fact, I assumed that I was letting things go and moving on instead of continuing to drag all these things behind me. I had another example of this phenomenon over the weekend.

In the interest of providing full context, I am going to confess to something that will likely make more than one of the people reading this make the Look of Disapproval ಠ_ಠ. Due to very typical glitches in The Best Health Care System In The World™, I ran out of eszopiclone (brand name Lunesta) which Dr. Psychiatrist prescribed to help me sleep1. I was out of it for about a week and finally got it filled again on Wednesday or Thursday of last week. Keep in mind, I’ve been chronically sleep deprived for probably 30 years, so I assumed a few days with disrupted sleep was not going to have that much of an impact.

Another item on the list of things I didn’t think would matter was anniversaries. October 0f 2020 was close to the peak of my mental health implosion. The significance of anniversaries for PTSD is something that falls into the “Know vs. Believe” category for me. I have been assured by multiple sources who all know way more about these things than I do that your brain keeps track of these things and they can potentially be quite disruptive. The part of my brain that understands science knows this to be true. The part of my brain that doesn’t really believe there is anything wrong with me in the first place rejects this idea. As has been pointed out in other contexts, science doesn’t really care if you believe it, anniversaries appear to affect me whether my brain wants to admit it or not.

On Saturday, in the midst of these two things both of which I was firmly convinced were not affecting me at all, I took on something of an emotionally charged task. This was a project I had been dreading taking on for some time and had a number of factors, rational or not, that had built it up to something quite intimidating in my mind. It turns out this was probably not a good idea. I was an absolute basket case on Sunday and only started feeling like my brain was functional again Monday afternoon.

What I have learned from this experience is, I really do have to pay attention to my own state before I dive into anything. Not only that, I have to have enough on the ball to say, “I have too much going on, I can’t take on anything else right now”. My previous history has not provided me much experience with doing this.


  1. As an aside, I want to sing the praises of eszopiclone. My relationship with sleep aids is peculiar. Anything I have tried previously has either not worked at all, or worked too well. The last medication Dr. Psychiatrist tried, doxepin, turned me into a zombie for 24 hours on the lowest available dose. When I was working, the solution was to turn to medications to promote wakefulness instead of trying to help me get more sleep. Eszopiclone has been flat-out miraculous. My sleep patterns on this drug have been more normal than they have been, possibly ever. I sleep 6-8 hours, I’m a little dopey in the mornings, and then I’m pretty much a normal human. I have REM sleep every night. It’s astonishing. ↩︎

Clever Title

Lead in paragraph that is long enough to make the drop cap work. I don’t care what anyone says, I like drop caps.

the difficult is, you see, days and months can go by when nothing changes. I could post endless variations of “I woke up, ate breakfast, then sat around the house doing nothing until it was time for bed again” but I don’t think that’s what my audience wants.

So I am forcing myself to write about something. This week has not been great. The symptom du jour is anhedonia which has meant I haven’t really wanted to talk to anyone about anything, ever. So of course this was the week I had three people reach out wanting to chat. Which I would love to do, if my brain could figure out how to break out of this funk.

I was going to write in a bit more detail about how the funk is hitting me this time but instead, I’m going to bed.

Clever Title

Back to school. This is (hopefully) my penultimate term in my masters program and what happens after that is not at all certain. I had hoped to have the basement done before I had to start school again but in spite of that I think I’m at a point where I’ll be able to manage.

Work has been interesting. There is an actual sick (in the previously discussed “sick or not-sick” sense) patient on the unit right now, one of the kind that I have spent the last 5-ish years specializing to take care of. The unit at my current place of employment has some very smart, very capable nurses and doctors but very few of them have a lot of experience caring for specifically this kind of patient. This is the kind of patient I would very much like to see more of on the unit and, I think, that is a goal that is shared by the Powers-That-Be at the hospital.

So there’s this sick patient and one of the assistant managers texted me to ask if I could come in to work tonight to help out. A couple more bits of relevant information; I worked last night, it was a pretty exhausting shift, and I didn’t get much sleep today for several different reasons. I’m really tired, is the point to all that. Even so, if this had been not that many years ago, I would have said yes without even pausing to think. I had told managers and physicians that I would live at the hospital 24/7 if that’s what was required to take care of the patient and I nearly did on more than one occasion.

I’m going to go on a little side-track here but we’ll get back to the main storyline in a moment. I have frequently thought that when I tell someone about the long hours and short sleep that I put myself through to take care of these complicated patients, they infer that this is due to some depth of character and dedication to the nursing profession that drives me to do these things. Nothing could be further from the truth.

The fact is, being a bedside nurse is kind of a shit job. All too often it is literally a shit job. Yes, it pays well, but really the only thing that makes all the, literal and figurative, shit worth it is if you’re doing something interesting. I pushed myself taking care of these patients because I wanted people to keep sending those kinds of patients to our unit. I wanted the admitting services to know that they could dump the sickest patient imaginable on us and we’d take it happily. Being a nurse is the only thing I know how to do that someone will actually pay me for so, if I need to keep working as a nurse, I need a good supply of crazy sick patients so I don’t get fed up with all the nonsense. This could potentially be a much longer tirade but I don’t want to lose focus.

The end of the story for today’s incident is that I did not go in to work. I really wanted to for all the above discussed reasons, but I also knew that it would really not be good for me and self-care won out.

Also, tomorrow we have our first D&D game in almost two months and I am not missing it.

Starting to feel like a broken record

Fatigue. Fatigue, fatigue, fatigue, fatigue. I really have difficulty trying to express what this is like. If anyone has had a car with a starter that failed, the feeling when you sit down, turn the ignition key and it just goes *click*, that’s kind of what it’s like. It’s not a dead battery exactly, everything is there and everything should work but somehow there is a connection missing that prevents anything from happening; “I think I’ll do some dishes.” *click* “Or maybe I’ll just sit on the couch”. “I have to go to work tonight.” *click* “Or I’ll go to bed”.

As I briefly mentioned, a couple days ago I decided to try kind of an experiment. I went to bed early and slept until I woke up. I stirred around for a little bit and then took a nap, and after I woke up I took another nap. Something happened that I can’t recall ever happening before; I slept until I genuinely could not sleep any more. Around 10 hours of sleep at night, two or three naps that lasted a couple hours each and I was wide awake. But I still felt exhausted and still didn’t have enough energy to do anything.

I suppose it would be like being on a strong muscle relaxer or a weak paralytic. Your brain is wide awake but you just can’t move your body.

I’m fully willing to accept that there may be a psychological component to this as well. This sucks. I’m not enjoying it. I can’t do everything I need to, let alone anything I want to, which is frustrating and upsetting which makes it even harder to try and muster the willpower to do anything.

Fortunately, as previously mentioned, I only have two more weekly treatments left (one after tomorrow!) but I have no idea how long it will take for my energy levels to get back to something closer to baseline. I suppose there is nothing for it but to wait and find out.

Basement Demolition: Complete etc.

The basement demolition is, as stated in the title, complete. We have a pump now that I have been assured will keep the basement dry during anything short of a Biblical flood. I’m trying to be optimistic about that.

The reconstruction will be in three phases. The first phase is wall reconstruction and painting which will start in about a week and take probably 5-7 days. Second phase is floor reconstruction which will take place at some point after the wall reconstruction and probably won’t take more than 2 days (if that). Third phase is unpacking which will start after the floors are done and take as long as it takes. I’m hoping that everything will be done by the end of October.

In other aspects of my life, the fatigue from my treatments is running roughshod. Last night I slept until I couldn’t sleep anymore and I’m still exhausted. I went downstairs to survey the wreckage and start making preliminary plans for reconstruction and that took all the energy I had. It’s really a good thing that I only have two more of these weekly treatments. I’ve missed two days of work this week and I’ll just have to see how I feel tomorrow.

It is enormously frustrating. I take stock of all the activities I’ve done over the last two days and the list is not long. At all. Somehow, though, I don’t have enough energy to do anything more and, while one part of my brain knows what is going on and understands, the other part of my brain will not shut up about how lazy I’m being.

As I believe I’ve mentioned, sometimes my brain is not particularly helpful.

Catchy Title

I was profoundly unconscious for about four hours there. One of those times when you’re so far out that when you wake up you don’t even know what day it is. Anyway, that happened and it helped a great deal.

I was going to expound on some trivial matter or other but instead I think I’ll go pass out again.

Laziness – Preliminary Results

When you have insomnia, you’re never really asleep, and you’re never really awake. With insomnia, nothing’s real. Everything is far away. Everything is a copy of a copy of a copy

Fight Club by Chuck Palahniuk

Edited to add – Was unpleasantly awake and restless, now back to being so exhausted my eyes are crossing. In the space of about two hours I’ve hit polar opposites.

This is really strange.

Treatment #2

The second treatment went very much the same as the first, minus the annoyance of driving and trying to park downtown since I was very kindly given a ride to and from so I wouldn’t have to deal with it.

I absolutely have been more fatigued than usual over the last few days but I’m still not sure how much is medication side-effects and how much is life side-effects. Treatment nurse said it was very likely both. It’s certainly not debilitating, but is is getting annoying. I have a couple days off with not much to do except homework so I’m going to try an experiment, FOR SCIENCE! My hypothesis is that if I spend the next two days being profoundly lazy, my energy level will improve.

I will post the results after a rigorous statistical analysis of the data.

Edited to add – Yeah, this is definitely more than my typical fatigue. I feel like I could go to bed now and sleep until Thursday.

Also, I’m starting to get some of those urinary tract infection-like symptoms. Sitting quietly wasting time playing video games and all of a sudden YOW! GOTTA PEE!

Fun stuff.

Seriously, Fuck Cancer

Disclaimer: This post will be mostly me venting. I’m not necessarily looking for solutions, assistance or even a response. This isn’t an indictment or condemnation of any person or anyone’s behavior, it is merely me shaking my fist futilely at the universe.

Something else I have struggled with since the beginning of this saga, before even I knew for sure what was going on or told anyone anything, is finding a way to express my general dissatisfaction with the world and my position in it without either sounding like I was blaming someone for something they did or didn’t or hadn’t done, or just sounding whiny.

This may also be connected to my nurse brain in a way. In my professional life people don’t generally tell me anything unless they want me to do something about it. In this way, physical medicine is quite different from mental health medicine. No one tells me that they’re having crushing chest pain because they want a sympathetic ear and a shoulder to cry on, they tell me so I’ll do something about it. There is certainly a component of compassionate and therapeutic listening to what I do (I hope anyway) but mostly I’m expected to actively try and intervene in some way that will improve the situation. This is, I think, a large part of why I didn’t really tell anyone that anything was going on; there wasn’t anything for anyone to do. I’ve had versions of the following conversation a couple of times now:

Me: Hey, turns out I have cancer

Friend or family member: Why the f(*# didn’t you say something before this?

Me: Why would I? There’s nothing you can do about it.

Friend or family member: [ExpressionlessFaceEmoji]

It took someone pointing out that I would very likely be kind of pissed off if the situation were reversed and it was one of my friends or family members that had cancer and hadn’t told me to get me to finally realize that people might actually want to know what is going on with me, even if there was nothing they could do about it.

[ArloGuthrie] But that’s not what I came to tell you about [/ArloGuthrie]

I feel like hammered shit today. I worked last night and, due to a combination of things that includes the unhelpful capriciousness of my brain, I haven’t really been able to sleep. Minus three or four hours of fitful dozing here and there I’ve been awake since around noon on Tuesday. I work again tonight (and tomorrow night) but I can’t really call out sick because I don’t have any sick time and I don’t want to miss a whole bunch of shifts this early in the process when it is very likely I will need the time off more in the coming weeks.

So I’m exhausted, dissatisfied with my job (this is a completely separate subject that is more complicated than will fit right now), I still have to go to work for the next two and there isn’t a whole lot that can be done about it.

This shit sucks.